For those of you who do not already know or who are just now tuning (clicking?) into the craziness that is Anna I have officially decided to get a lung transplant (eek), or at least go down that road in the hopes that I get accepted and in a few
short long months it all works out and I am the happy and, for the first time much more, healthy new home to a fabulous "gently used" pair of lungs!
My hope is that this blog is a place for me to share my experience with others on a regular basis and without having to individually tell everyone of you what is going on with me (though I am sure I will do a bit of that as well!) So buckle up and enjoy the ride!
I have just started the whole transplant process and actually don't even think the official doctor talk between my current CF team and the transplant center has even happened yet so in the world of transplant there isn't really much to report.
So in other news....
I got my port de-accessed and then re-accessed for the first time ever today. (i'm not even sure those are the right terms but hey makes sense to me!) I was pretty nervous about it but it went really well. Taking off the first dressing made my skin, super itchy but this is the same as it has been with my piccs so I was used to that part. The nurse put numbing cream on the site so it would not hurt when it got re-accesed, then I was free for a bit. It was nice not having all the tape and tubing on/in my arm so I am liking that aspect of the port. Putting the new needle in freaked me out a tiny bit but it wasn't bad at all. I am not sure if the numbing cream worked because I did feel the needle but it was super quick and barely hurt at all. I'm not sure if this is just how it is with ports or if it wasn't numb enough, the times I have had the numbing cream for blood draws I did not feel the needle at all so I guess I will find out next time. We left out the cavilon, a type of skin prep, since I am suspecting it may be the culprit of my allergy, again only time will tell.
Not much else to report on today, pretty much same old same old here in the Children's Hospital. I think I will put a post up later with some of my background but for now this is all you get so enjoy!
Great work ANNA!! I'm so happy that you started this!!!ReplyDelete
You are just awesome. Again, I love your sense of humor. In a world where crazy and frustrating things happen to all of us mere mortals, a comedic outlook is simply healthy and essential. If we can't laugh at our situation then life becomes one long drawn out monotonous clock just ticking away until we leave this temporary home. I love you and you're brilliant.ReplyDelete
Kai, this is very insightful. It's helpful to me, too.Delete
Anna, this is an excellent blog. Your cleverly written narration with the added parenthetical comments keeps me reading. I'm so proud of you and can't wait to go for a long walk with you or, better yet, have you come over and vacuum my house. :DReplyDelete
and can't wait for the next blog entryDelete
Thanks for the feedback guys, I am glad you enjoy it!ReplyDelete
I just found out about your blog, so I'm starting at the beginning. I love it! Your natural writing style makes me feel like I'm having a chat with you. I really appreciate your sense of humor. Laughter is the best medicine, and you've given all your readers a good dose of giggles. Thanks!
Would love to know what kinds of things you are doing? Any crafts? I bet everyone is interested.I know that I am.ReplyDelete
By the way - Sophie Logos is my writer's name.