Wednesday, July 2, 2014


Today is the day of my oncology appointment.  It's not really a day I have been dreading or anticipating, it just kind of is.  I was glad to finally be getting some answers but at the same time I already felt a little like we knew and all today would bring was conformation.  Well my appointment was this morning and we have learned that I do indeed have PTLD (post transplant lymphoproliferative disorder) a form of lymphoma.  It also is fairly aggressive and will need to be treated with full on chemo, which means I really will be needing a wig.  I have been kinda half joking with people for a few months now that I'm gonna need a wig in a few months because I'll be bald but now it looks like it will be a few weeks not months.  I've already lost about 2/3 of my hair since my transplant, which is apparently very common, now we will just speed things along!  I'm kinda looking forward to getting wigs actually, it seems fun to get to change not only how you style your hair, but even the cut and color any day.  I can have a short bob one day and long curls the next!

As far as treatment goes I will be admitted into the hospital for 5 day segments every 2 or 3 weeks.  While in they will pump me full of the lovely drugs.  I am hoping to be able to go back home in between treatments so hopefully that all works out.  I am currently waiting in admissions at the hospital and will get my first round of chemo tomorrow.  Wish me luck!!!


  1. I will look forward to all the different hair styles! You are amazing! I am praying for you!

  2. I want to get you a cool fun wig. ( I hope everything works out and I will wait for you to be back).
    -Amy m

  3. I've read some of your blog and you are very strong to have endured what you have. Keep strong and don't let it get you down and at some point it will only get better. xx

    --fellow cf

  4. Praying for you Anna and your family. <3
    Donna Brooks

  5. Hey Sweet Anna!! Thank you for sharing so much of yourself through your blog!! Your attitude is AMAZING!! God has given you such a special gift to help others through hard things in their lives as well. We of course are praying for you around the clock! Go Chemo! Do your job!!! Love you, Aunt Nancy

  6. ...and I will have a lovely summer hat for you! Just tell me your favorite colors! Take heart dear one, you will come out of this a winner!